Showing posts with label new york times. Show all posts
Showing posts with label new york times. Show all posts

Friday, March 28, 2014

A Younger Point of View

Just to briefly, and I do mean briefly, follow up on yesterday's post about the ever changing dynamics of going online to share grief and loss experiences, a friend sent me the below link to a fantastic New York Times story addressing this very topic.
 
I loved this story about Millennials and hope you do too because it introduced to me some new websites I enjoyed discovering plus it highlighted the thoughts and feelings of a younger generation in the midst of trying to figure out the best way to deal with their grief their own individual way while helping others who are also trying to do the same thing.   

Here's the link to the New York Times story:

http://www.nytimes.com/2014/03/23/fashion/an-online-generation-redefines-mourning.html?_r=0

I'm glad it's the end of the week.
I'm beat!
P.S.  Yesterday I had a lot to say and the words got away from me.  So sorry lovely readers for going long on yesterday's post. 
 
Have a great weekend I hope you get to do something fun, relaxing or outrageous!!
 

Wednesday, October 30, 2013

Compassionate Action

Courtesy of Dave Allen Photography


Thought For The Day

"Tuning in to the needs and feelings of another person is a prerequisite to empathy which in turn can lead to understanding, concern and, if the circumstances are right, compassionate action," according to Daniel Goleman, an author, psychologist and science journalist.

I read this quote recently in a story about empathy in The New York Times and it caught my attention.

Compassionate action.
 
It reminds me of the Jesuit concept of social justice, which is acting on something you may see or feel that is happening to another person and then getting involved to try to change it for the better.  
 
To me, compassionate action means not only putting yourself into another person's feelings but feeling it to the point that you want to help someone who is sick, hungry, in trouble, or suffering a loss of some sort.
 
It's something to think about.
 
 
 
 

Thursday, September 19, 2013

Never Look Away

When you consider the amount of emotional baggage we all carry around with us, it is amazing that we find love.
 
Wounded though our hearts may be, we cannot fight the attraction and pull of another person who catches our fancy.
 
 
Maybe you have been lucky and found love more than once.

I found love with a small l a few times, but found love with a capital L only once.  It's an amazing, powerful, crazy thing this love emotion that takes us over and keeps us going and truly defines our lives.  It is not to be treated lightly, as though it were something you can just toss away whenever you want and find something better when you want it.
 
Oh no.  It is not an emotion to played with.  It makes your fingers tingly and your mouth dry and when you find the one who is right for you, don't ever look away.   
 
Grab it and don't hesitate, for the one who loves you deeply, the one who heals your wounded heart, probably also inspires you, just as Denise inspires Kevin Kelly.
 
Please read this beautiful love story in the link below written by Kevin Kelly about his one and only Denise. 
 
It blew me away because it made me remember what romantic love is all about and I hope it does the same for you.

http://www.nytimes.com/2013/09/17/booming/inspired-by-denise.html?smid=tw-nytimeshealth&seid=auto&_r=0

Wednesday, May 15, 2013

Angelina's Health Decision

Angelina Jolie made a powerful decision.

It's not a decision that every woman has the opportunity to make, but I stand and applaud her courage and wish her a future of wellness.
 
Faced with medical information from her doctors that she had an 87 percent risk of developing breast cancer and a 50 percent risk of developing ovarian cancer because she carried the BRCA1 gene, she decided to take control of her health and be proactive.  She decided at the young age of 37 to have a double mastectomy which means she had both of her currently healthy breasts surgically removed.
 
Jolie didn't want to wait around for the cancer to come and claim her.
 
Jolie, the winner of an Academy Award, two Screen Actors Guild and three Golden Globe awards, wrote an op-ed piece which appeared in yesterday's New York Times about her medical decision and I think every woman who read it paused afterwards and thanked God for their good health and blessings and maybe at the same time they also thought about someone they had already lost to breast or ovarian cancer or is in treatment.

Whether a mother or a daughter, grandparent, sibling, or friend, chances are very good that almost every New York Times and Cry, Laugh, Heal reader knows someone affected by fbomb cancer.

Actress Angelina Jolie and her partner, Actor Brad Pitt, with their six children
I imagine that every woman, when first diagnosed with breast cancer has two burning questions, "What am I going to do?" and "Will I lose my breast?"  As the mother of six children and the daughter of a woman who died from cancer at age 56, Jolie said she had all the information she needed to face her scary health dilemma, stare down her future and go forward.

Her New York Times op-ed is amazing and for me, her most inspirational words came in the last two sentences:

"Life comes with many challenges.  The ones that should not scare us are the ones we can take on and take control of."
 
Cancer can many times take us to the land of grief and, believe me, it is not a place anyone wants to visit.  But once we find ourselves thrown there, we can and must find a way to get through the tears and the pain and work to find a new way of living our lives.
 
It is about trust, and love, and being human.  And it is most of all about hope.
 
Please don't ever give up.
 
You've got the power.

Tuesday, April 23, 2013

Widowed Fathers Reaching Out

I know a few widowed mothers and have great respect for how they handle the role of single parent.

I don't know any widowed fathers so I have always been curious about how they juggle the demands of raising children and handling their work careers. 
 
I imagine that a family member helps them; maybe a mother, a sister or even a brother.  Or maybe the fathers had already hired someone to help them when their wives sadly became too ill or were weakened by treatments.
 
But after reading the insightful New York Times story below, I found that widowed fathers and widowed mothers essentially struggle and try to deal with the same issues: school, bed time, personal responsibilities and housekeeping.


 
 
At the end of the day, it is not possible for one person to physically and mentally juggle it all.  It takes a lot of support to parent your children and take care of your broken heart all at the same time.  And it's okay to admit that.
 
You are not SuperParent.  You need help.
 
Asking for help doesn't mean you are weak.
 
Asking for help is a sign of good mental health.  It means you recognize that your efforts are not changing your situation the way you thought it would and something different needs to be tried.
 
Asking for help is a sign of strength.
 
It doesn't feel that way when it is happening but it's true.
 
I am always in need of help.  Many times I would call my grief counselor and my voice would be shaking and my hands would be shaking and I would try my best to keep it together but it wasn't happening.  Sometimes I couldn't even put together a simple declarative sentence.  All my words would come out in a jumble.
 
It's hard to put yourself out there when you are most vulnerable and in need of kindness and support.  And as a single parent, you feel you have to be strong for your children and show them the way to go.  I'm always asking other parents what's going on with their children and then telling them something that is going on with my child to see if a particular thing is common to them. 
 
"Well how did you get them to eat that?"
 
"What time does your child go to bed?"
 
"Have they asked about blankety-blank yet?"
 
Please read this great New York Times story below focusing on widowed fathers and the wonderful way these guys handled their unexpected situations:

A Lifeline for Widowed Fathers



Three springs ago, Joe Ciriano was living in a fog. He had just lost his wife of 21 years to breast cancer. He was now the sole parent of a son and three daughters, one with Down syndrome. The children, ages 6 through 19, all had different needs and levels of understanding.

Mr. Ciriano, 51, an accounts manager in Burlington, N.C., was riddled with doubts about his ability to carry on as a single parent and was struggling to keep his head above water. While deeply mourning his wife, he was unsure of how good a parent he could be.

“What is normal?” he wondered. What should he say to the kids about their mother? How should he treat them? Could he handle his family and do his job?

With no one to share day-to-day family responsibilities and decisions, and to help fill both his and his children’s emotional and physical needs, life felt “overwhelming,” Mr. Ciriano said in an interview.
Then something wonderful happened. He and Karl Owen, a 49-year-old software engineer from Chapel Hill whose wife had died, of lung cancer, three weeks after Mr. Ciriano’s, were asked to form a support group for fathers widowed by cancer who had children at home.

At the University of North Carolina at Chapel Hill, Dr. Donald Lee Rosenstein, a psychiatrist, and Justin Michael Yopp, a psychologist, weren’t sure how openly these men would talk about their feelings and struggles. But the researchers saw a pressing need to help them and their children through this trying life experience.

Too often, they’d found, widowed fathers contend with social and emotional isolation — a profound aloneness — and suffer in silence.

“I’m not a support-group kind of guy who wants to talk about touchy-feely kinds of things,” Mr. Ciriano said. But finding himself “lost at sea,” he was willing to give it a try.

The result has exceeded all expectations. The eight widowed fathers who formed the core group, led by a professional facilitator, quickly learned that their feelings, doubts and concerns were shared by all and offered one another insights and suggestions on how to cope.

“All the men were exhausted and suffering a crisis in confidence, fearful of screwing things up,” Dr. Rosenstein said. “They faced countless daily issues — school problems, struggles with discipline, bed times, expectations and a tendency to let things slide a little, which really doesn’t work well for kids.”

Mr. Owen said in an interview: “A lot of things that seemed abnormal in our lives were common to the other guys in the group. Someone would bring up a situation, and the rest of us would nod, ‘Yeah, me too.’ These issues were very difficult to discuss with friends who hadn’t been through a similar experience,” said the father of two children, who were 9 and 12 when their mother died.
 
“We were all in a place in our lives we hadn’t prepared for,” he said, “and collectively we could share experiences and help each other navigate.”

Participants in the group developed a remarkable bond, a level of friendship and sharing that is rare among men, who even now are expected to be strong and resilient, and many of whom still avoid talking about deep feelings and doubts.

Three years later, four of the men continue to meet monthly and have benefited so much from the experience that they are reaching out to help other fathers newly widowed by cancer.

Meanwhile, Dr. Rosenstein and Dr. Yopp, who said they could find no similar support groups for widowed fathers, are trying to get others started at cancer centers around the country. They would like to conduct a formal study to determine “what is most helpful and what isn’t to these men,” Dr. Yopp said in an interview.

Ideally, he said, every major cancer center would have a support group for widowed fathers, whose experiences and needs are different from those of widowed women and older men. (More information about how the group works can be found at singlefathersduetocancer.org.)

Cancer is responsible for more widowed fathers than any other cause of death, Dr. Rosenstein and Dr. Yopp noted in an article in the journal Psycho-Oncology. An estimated 100,000 children are living with widowed fathers in the United States, and the trauma of losing a mother at a young age can seriously disrupt a family’s structure and the children’s development, sometimes with lifelong consequences, they wrote.

“There is a pressing need to understand the experiences of these widowed fathers and to develop supportive interventions for them and their children,” they said.

I can attest to the value of such support. I was 16 and my brother was 12 when our mother died of cancer in 1958, leaving my father emotionally, physically and financially drained by her yearlong illness.

To stay afloat, he worked two jobs and had little time to enforce routines and discipline at home. I soon departed for college, and my brother was left to cope on his own with the devastating loss of our mother at so vulnerable an age.

“Men traditionally do not play the role of the more nurturing parent; therefore, as widowed parents, fathers may be less likely to employ child-centric or nurturing parenting styles and more likely to feel unprepared than widowed mothers,” Dr. Yopp and Dr. Rosenstein wrote.

They said various studies had found a clear “link between the mental health of the surviving parent and the adjustment of the parentally bereaved child.”

A major issue for widowed fathers, Dr. Rosenstein said, is providing parental consistency with love and understanding. Good parenting requires structure, clear expectations, well-defined limits and reasonable consequences.

“What I’ve seen happen a lot is the former family order melts away and no new order is put in place,” the psychiatrist said. “This can be tough for kids, who feel cared for when there are limits and consistent discipline.”

The trauma of a young mother’s protracted death from cancer can be exacerbated by the patient’s understandable wish to live as long as possible for her family, Dr. Rosenstein added. These women often choose aggressive therapy until the bitter end, missing the comforts of hospice care and the opportunity to express their love, wisdom and wishes for the family.

In an online survey conducted by the two researchers, nearly half of 144 widowed fathers said their wives had had no chance to say goodbye to their children.

Thursday, March 21, 2013

Public Tears

I've done it in the grocery store in the applesauce aisle.  I've also done it while walking down 17th Street, NW and on the Metro platform at Farragut North.
 
What have I done?
 
Crying in public.  And you know what?
 
When I was doing it, I could have cared less about who I ran into or what I looked like.  I was in the throes of grief and I had either heard a song that reminded me of my husband or was coming from a situation where no one acknowledged my loss or what was happening to me.
 
When I was doing it, I felt as if I was in a bubble; a bubble of trouble, and I had no expectations that anyone would come up to me and put their arms around me or try to comfort me.
 
I did it because I wanted to; plain and simple and it made me feel better.  I was not trying to draw attention to myself.  I was just trying to put myself back together and crying was liberating.

After reading the story below, I know that I'm not alone.  And if you find yourself crying in public, don't feel ashamed. 
 
 

Look at Me, I’m Crying

I’ve done it on the subway and at the Museum of Modern Art, in Prospect Park, Tompkins Square Park and leaning against the locked gate of Gramercy Park.
 
If you live in New York, you’re bound to end up crying in public eventually; there just aren’t enough private places. Just the other day I saw someone doing it on West 12th Street. A tall woman in a beret, with a curtain of reddish hair, she had tears streaming down her cheeks. She wasn’t on the phone, wasn’t accompanied by a man, or a mom or even a dog. She wasn’t beautiful, the way a lot of people in New York are, but I couldn’t look away.
 
My stride didn’t change as we passed each other, but something did. A fizzy kind of sweetness bubbled up — as if the openness of her face had opened something in me. For a few minutes I forgot whatever I’d been worrying about and breathed a little deeper.
 
The redhead was a particular type of public weeper: silent, dignified, angelic. I hope that when it happens to me, it looks like that, though I suspect there is more whimper, more grimace.
 
But even the unpretty ones, snuffling, their faces like balled napkins, are mesmerizing. There is something beautiful about a disarmed stranger. We usually only get to witness that kind of vulnerability with friends or family, when something — sympathy or apology — is expected of us. Public criers ask nothing; they don’t need anyone to take care of them.
 
In some ways, that kind of transparency is as good a defense against interference as the famous blank New York stare.
 
Public criers ask nothing; they don’t need anyone to take care of them.

One afternoon, I was riding a Brooklyn-bound Q train with my mother, who was visiting from Cape Cod, when our conversation lulled. We each glanced around the subway car at the other passengers, their heads bobbing in unison, the eyes of the man across from us doing a creepy back-and-forth twitch as he watched a train whizzing by in the opposite direction behind us. Some people read, or pushed buttons on their smart phones, but most just stared without expression at the floor or the garish overhead posters for Dr. Zizmor’s cosmetic dermatology. My mother (who is, notably, a psychotherapist) leaned into my shoulder and whispered, “Everyone on this train looks depressed.”
 
I snorted, whispering back: “No, Mom, they just have their train-faces on.”
 
 In a place where we are so rarely alone, we find privacy in public. We all have our masks, behind which we are free to be, yes, depressed, or any other emotional state we may not want to share with 30 fellow passengers.
 
The problem is, we often don’t want to show our emotions to our true intimates either. The apartment I share with my girlfriend is so small, it can be easier to find privacy outside. During a recent fight, we reached an impasse; we were clearly not going to reach a resolution. We rarely fight, but when we do, it feels like there isn’t enough room in our apartment for both of our feelings. And there’s nowhere to have a phone conversation that the other won’t overhear. So I went outside to walk the dog.
 
Through a number of domestic partnerships, walking the dog has been a form of privacy for me. I’ve made many of my most personal phone calls during those walks, cooled off and of course, had a good cry. It’s even easier to let loose in public when you’ve got a 70-pound pit-bull in tow, and when you’re on the move.
 
On that same visit, my mother commented on how fast people walk here. I had, at the moment she spoke, been furious at the tourists in front of us for strolling so lackadaisically, despite our not being in a hurry to get anywhere. I began with the usual explanation, about how busy everyone here is. But mid-sentence, I realized that that wasn’t the whole story; movement was part of the mask.
 
Although I see plenty of stony-faced striders on the sidewalks of New York, the faster people are moving, the more they tend to reveal. When riding my bike through the city, I frequently sing aloud — mostly old soul tunes, but everything from country to rap music — and I hear other bikers doing it as well. Because who cares? If anyone stares, they’re staring at your back and you’re not around long enough to notice. I don’t do it for attention; it just feels good to belt out “Tenderness” with impunity.
 
Perhaps this law of motion is part of why it’s so startling to see people trip. It’s bound to happen millions of times a day here, but still, seeing someone stumble instantly provokes a deep cringe. Like crying, it’s a glimpse of pure, involuntary vulnerability, and yet there’s something different about it; it’s more disturbing than sweet. We feel a greater demand to lend a hand or show concern because we know, more clearly, that it could happen to us — we like to think we have less control over our bodies than we do over our emotions. We all can feel the stumbler’s flush of embarrassment. So we grimace, surge with silent sympathy, and reach out.
 
Even though as any stumbler knows, the worst part, after detaching a heel from the subway grating, is someone asking “Are you O.K.?”
 
Of course some people feel differently. They want to be asked. They even want to be asked why they’re crying. Maybe people can be divided into those who want to be asked what’s wrong by kind strangers, and those who don’t.
 
For me, it’s not that I want apathy, just privacy. To be noticed, but not interrupted. It’s comforting to be seen in our grief, there is a confirmation in it — however awkward it makes us feel. Is that part of why we live here? New Yorkers do tend to be the kind of people with both a need to be seen, and a deep fear of it. Somehow, this place satisfies both.
 
When I first moved here, I loved to ride the elevated trains, especially at night, when I could glimpse the thousands of glowing windows, each an indication of a life or a cluster of lives, as rich and difficult and sweet as my own. Glimpsing inside, seeing the moment when the lights go on — or off — is a confirmation of our likenesses, our common depths.
 
I know I’m not the only one who feels that way, and hope I’m not the only one who sees something more uplifting than snot in the face of a public crier. Because just Monday morning, coming up from the subway at Eighth Street, it happened again.
 
My phone rang. “Hi, Mom,” I said. For many reasons, it had been a hard few weeks. The right voice at the right time, and the seal between my public face and the feelings underneath it broke.
 
“What’s wrong?” she asked, and behind my lenses, the city went soft. Soon, tears collected under my chin, and I lifted my glasses to wipe my eyes. The sun was bright, the sidewalk crowded, but I was still moving, and the city’s edges had all blurred to water, the passing faces turning to patches of color. Even if, at that moment, I had cared whether they were staring, I wouldn’t have been able to tell.

Melissa Febos, the author of the memoir “Whip Smart,” teaches writing at Sarah Lawrence, the New School and New York University.

Tuesday, March 19, 2013

Wild By Cheryl Strayed



Tell me, what is it you plan to do
With your one wild and precious life?
                     ~ Mary Oliver
                     "The Summer Day"


From the moment I started reading the first words of the New York Times bestseller, Wild, by Cheryl Strayed, I couldn't put it down.
 
It has truly been a long time since I have read a book so honest and at the same time so poignant in its telling of a compelling personal story.
 
In hiking the Pacific Crest Trail all by herself from the Mojave Desert in California to the Bridge of the Gods that crosses the Columbia River at the Oregon-Washington border, Cheryl Strayed tests herself physically, mentally and emotionally in ways that many people never do in their whole lives.  And don't ever want do.  Ever.  Talk about pain!  You will never think about hiking boots the same way after reading Wild.
 
But Cheryl Strayed is a beautiful writer and through her unfiltered descriptions of what she is feeling and thinking, she is able to grab you and take you along on her powerful journey as though you are right there with her, step by step, the whole time. 
 
As she treks along the Pacific Crest Trail, Strayed slowly finds her inner resources and becomes stronger as she sleeps outdoors, purifies her water (I could feel her thirst), dreams about Snapple lemonade, adjusts to carrying a heavy backpack for miles and miles every day through intense heat and then snowfalls, deals with rattlesnakes and black bears and sometimes just being the only girl on the trail.  As she occasionally meets fellow hikers along the way, I was amazed by the immediate trust and support that most of them felt for each other; as if there was an inner radar that told each of them who was friend and who was foe in the great outdoors.

Grief is what puts Strayed on the Pacific Crest Trail and she describes every raw emotion of it: the falling apart, the sadness, the regrets, the anger, the exhaustion, the inability to wrap your brain around reality.

Just to give you a taste of how Strayed writes, here is a short except:

"There were so many other amazing things in this world.

They opened up inside of me like a river.  Like I didn't know I could take a breath and then I breathed.  I laughed with the joy of it, and the next moment I was crying my first tears on the PCT (Pacific Crest Trail).  I cried and I cried and I cried.  I wasn't crying because I was happy.  I wasn't crying because I was sad.  I wasn't crying because of my mother or my father or Paul.  I was crying because I was full.  Of those fifty-some hard days on the trail and of the 9,760 days that had come before them too.

I was entering.  I was leaving.  California streamed behind me like a long silk veil.  I didn't feel like a big fat idiot anymore.  And I didn't feel like a hard-ass motherfucking Amazonian queen.  I felt fierce and humble and gathered up inside, like I was safe in this world too."

I don't want to give away what happens to Cheryl Strayed in her amazing book so I will not reveal the particulars of her long distance adventure in the wilderness. You must read it for yourself!
 

Tuesday, March 5, 2013

The Loss of A Child

When I have been in support group sessions and listened as people have talked about losing a spouse there is usually a sense of bonding, a feeling of "having been there" in the expressed feeling or thought.  A supportive dialogue usually ensues and sometimes people even feel a sense of progress.
 
Being around other widows and widowers can be a blessing after you have lost a spouse.  I remember thinking, "Finally! Here are people who are dealing with what I am dealing with!"  Because of our shared experience, we could tell jokes or cry or get angry about the loss of our loved ones.  I think we even began to think that maybe losing a spouse is something most adults eventually have to experience.
 
 
 
 
I remember though when a woman whose husband had recently died began talking one day about how she also had lost her child.  I felt a stillness and reverence come over the room.  The death of anyone you love permanently changes your life.  A spouse, a parent, a friend.  There is always a yearning for more time and a need to connect even after they are physically gone.

But the death of a child is in a category all by itself.  Such a profound loss is unbelievably cruel and goes against the natural order of life.  

Anyone who can talk, let alone sit down and write a complete and rational thought about their deceased child is a person who is truly resilient.  Jeremy Shatan is one of those people.
 
Please read about his beloved Jacob in the following New York Times story and some of the jarring events that have marked Jeremy's journey since Jacob's death.


March 3, 2013

A High-Functioning Bereaved Parent

By JEREMY SHATAN
So where am I now, 13 years after my 2½-year-old son, Jacob, died because of a brain tumor? One thing I can say is that my junk mail has no idea where I am. The other day I threw out yet another letter offering to give us advice on Jacob’s college career, as well as a solicitation to re-subscribe to Highlights magazine. Obviously, Jacob is not going to college. And my surviving children are 11 and 13, a bit out of the Highlights demographic.
 
One construct I use to help myself understand where I am now is a term my wife and I came up with: High-Functioning Bereaved Parent. As is often remarked, someone who has lost a spouse is handily defined by the word “widow” or “widower.” But there is no shorthand to describe a parent who has lost a child. Language is a reflection of culture. The great majority of people will never experience the loss of a child and would prefer not to think about it all that much. Raising children is fraught enough without having to dwell on their mortality. So for now, H.F.B.P. will have to do. I’ll certainly take it over “every parent’s worst nightmare.”
 
So how exactly does being a High-Functioning Bereaved Parent manifest itself? I get out of bed, I help raise our kids and run our household, I laugh, tell jokes, watch violent movies, listen to music and go to concerts. So it all looks pretty good from the outside, and it usually feels … not bad, which is how I prefer to answer when someone asks me how I’m doing. I have no doubt that much of this equilibrium comes from the fact that my wife and I have been together through all of this and still find a lot of joy in our marriage and our surviving children. I also have the privilege of being the executive director of Hope & Heroes Children’s Cancer Fund and working every day to improve the lives of children with cancer alongside the staff of the Herbert Irving Child & Adolescent Oncology Center. Among bereaved parents, I consider myself very lucky that I get to work for Jacob every day.
 
But I knew from the moment Jacob died that we would never get over his loss; we would only learn to live with it. At the risk of torturing grammar, perhaps I should revise that mantra to be “we would only be learning to live with it,” because it’s a process that never stops.

One way I know that is from the physically jarring sensation I feel when the huge chasm in my life abuts the solid ground I usually walk on. It could be at a high school information seminar for my daughter, for example. There’s just this moment of wrongness. Somewhere in my soul there’s a trajectory for Jacob’s life that is still going on, a part of me that wonders why we haven’t already hit these milestones with him first. The natural order of things has been disturbed, but that hasn’t entirely stopped me from attempting to hew to that order. Or it could happen with a change in the weather, which can trigger a sense memory sending me back to the time when Jacob was being treated.
 
That aspect of things is a form of post-traumatic stress disorder, I suppose, which feels like unprocessed experiences that my brain is constantly working on behind the scenes. A hint of fall in the air, and the curtain is momentarily yanked open, exposing the churning attempt at understanding what happened.
 
For reasons like those, some days are more effort than others. Also, occasionally my status as an H.F.B.P. can lead to a balancing act in relation to my work. Naturally, I can empathize with the parents I meet at the clinic — I have walked in their shoes. But since Jacob did not survive, I don’t want to shake their carefully constructed hope that their child will. One thing I always make sure to convey is that each diagnosis is unique and that treatments have continued to improve. My perspective still allows me to have hope for others, and if things do take a turn for the worse, I can offer the powerful example of my own survival after the loss of my son.
 
But it hasn’t always been that way. In the emotional chaos shortly after Jacob died, my wife and I took our infant daughter to a retreat for bereaved families provided by Chai Lifeline. We were already wrung out, but this was a new form of wringer: story after story of gut-wrenching, unimaginable loss. My wife got a migraine so intense that the rattle of a newspaper caused her pain; we considered leaving after the first night.
 
We stuck it out, and through the haze it dawned on us: you can live on after the loss of a child, it’s not impossible. After the retreat, when the sadness would threaten to become overwhelming, I would think of these other bereaved parents and take strength from their behavior. Regular conference calls with a group of dads also helped a great deal.
 
So my path has not been through completely uncharted territory. I have had mentors to follow, whether or not they would have called themselves High-Functioning Bereaved Parents. In the end, I’m not sure if being an H.F.B.P. is a choice, exactly, but I believe that putting a name to our “condition” has helped us not just survive, but to thrive and engage with life more fully.

Jeremy Shatan lives in Inwood, Manhattan, with his wife and two surviving children, is proud to serve as Executive Director of Hope & Heroes Children’s Cancer Fund, and writes about music at LINK 3 AnEarful and @AnEarful.

Wednesday, February 13, 2013

Roger Rosenblatt's Reflections

 
Some wonderful friends on the West Coast gave me Roger Rosenblatt's book, Kayak Morning, as a Christmas present.  I was familiar with Rosenblatt as a writer for Time magazine and also as a columnist for The Washington Post, but was unfamiliar with the tragic death of his daughter, Amy Solomon,  a 38-year-old wife and mother of three children, from a heart condition.
 
In Kayak Morning, which was written two years after Amy's death, Rosenblatt explores the human experience of loss.  His descriptions of his grief and his reflections about his daughter Amy's death are calm and straightforward yet poignant.

It is while Rosenblatt is kayaking in a creek not far from his home in Quogue, New York that he finds the solitude he needs to sort through his scattered thoughts about his grief and work through his deep sorrow to try and make sense out of what has happened to him and his wife, Ginny.  Rosenblatt recounts conversations that occured during this particular summer of kayaking and in an unusually striking discussion, he presents the idea that grief is a gift:


"You have to understand," she said. "Grief lasts forever."

"Like death," I said.

"Like death. Except death is someone else's condition, and grief is all yours."

"I feel worse now than I did shortly after she died."

"And you'll feel worse next year.  And worse the year after that, unless you find a way to transform your grief."

"We're back to that."

"We've never left it," she said. "Grief comes to you all at once, so you think it will be over all at once. But it is your guest for a lifetime."

"How should I treat this guest? This unwelcome, uninvited guest."

"Think of the one who sent it to you," she said.

I thought I had become familiar with most of the different ways that grief can be felt and presented to a person who has lost a loved one until I read the above excerpt.

It took me aback; the first time I read it, I thought to myself, "Grief is definitely not a present to be opened and cherished." But the more that I thought about the profound idea of it, the more I began to understand Rosenblatt's surprising point about grief being something personal given to you by the person you loved and lost. 

For it is in our grief, that we struggle to still keep our loved one alive.
 
Through writing down memories and sharing stories about the spouse, child, parent, friend or relative you loved and lost, you are  remembering your loved one, and as painful as your loss is in the beginning, grief, through the passing of time, does become more manageable.
 
Bringing your loved one back into your life through stories becomes a gift of sorts through the laughter, smiles and even tears that the person's life brings to others.
 

Tuesday, January 29, 2013

Get Your S#%t Together

Are you one of those people who thinks that if they prepare to write their will that they are inviting tragedy to happen to them?

Guess what?  It doesn't work that way.


Chanel Reynolds

If you haven't taken care of executing your will, and/or sharing bank account numbers with your spouse or partner, then you should do it today.

Not to be an alarmist, but you really have no idea what is going to happen to you and you should be prepared.  Think of it as a gift that you are giving to the people that you love.  Life has a way of catching you off-guard and then, unfortunately, you find yourself with regrets.

I promise you, once you take care of figuring out who is charge of your health decisions and your property should you not be in a position to say, you will feel amazing!

First stop: a great web site called Get Your Shit Together (http://getyourshittogether.org/)  No shit.  That's really what the website is called.  It offers free downloads of lots of templates for wills, living wills and power of attorney.

Chanel Reynolds started the website a few years ago after her young and vigorous husband was hit by a car while bicycling.  He tragically died from the accident, leaving Reynolds with two children to raise.  She knew she and her husband had drafted wills for each other but the wills weren't signed and she had no idea how much money they had in their bank account.

I related to Reynolds story.  My husband was sick for about two and a half years before he died and I remember that awful feeling of being completely helpless when the doctors came to me one day when he was in the hospital and they asked me if I had power of attorney.  I told the doctors I didn't and they quickly replied, "You better get it today."

All at once the sheer mighty weight of our collective finances fell on my shoulders and I was not prepared to take them over either.  My husband had a will but it was out of date.  I didn't have a will and I didn't have power of attorney.  And our dear son was thirteen years old during this chaotic and emotional time.

Of course, now I do have a will and a living will and I feel a lot better knowing that copies of those essential documents sit in my attorney's file cabinet.

No matter what your situation, read Chanel's story and check out her helpful website which features a checklist of things that you may want to review to ensure that your property and your health are handled the way you want.

Here is the link to Chanel's story recently published in The New York Times:

http://www.nytimes.com/2013/01/12/your-money/estate-planning/shell-tell-you-its-time-to-think-ahead.html?_r=0&adxnnl=1&ref=your-money&pagewanted=1&adxnnlx=1359424907-eY6eXyTxpnJ6bVGav6sExw

Monday, January 14, 2013

An Honest Dialogue

After a loss, people often feel that they have no resources.
 
They feel they have no one to talk to about the extreme pain they are feeling.
 
A little over two years ago, I launched Cry, Laugh, Heal as a place where people could go to read and discuss grieving and say to themselves, "I'm not alone.  Someone else gets it."
 
Because in the end, no one ever wants to feel alone.
 
Since starting the blog I have written about grief and about the crucial process of trying to put the pieces of your life back together after the death of a loved one has blown it apart.  Besides grief, I have also explored the topics of nutrition, friendship, humor, honesty and raising a child by yourself after the death of a spouse.  Grief is a multi-dimensional issue and I think the above topics are but a few of the many handy-dandy tools that are related to surviving a loss.
 
I have found that an important part of grieving in a constructive way is acknowledging it, facing it head on and not running away from it and all of the shock and pain it causes.  Calling it what it is is soooo important.

Another crucial part of the grieving process is to reach out to others.  Do not be afraid to talk about your grief.  I'm not saying it's a 24/7 topic.  No topic can be talked about all the time.  But don't be afraid to say to someone you know who cares about you, "I feel awful" or even "I'm scared.  I have no idea what's going to happen next."
 
You will connect.
 
As did this very brave woman who is the subject of today's post.  Her final connection is truly powerful and was written about recently in the New York Times.  This woman found an inner peace and was not afraid to talk about what was happening to her.  Her story is raw yet she is courageous in an unprecedented way, giving of herself, reaching out and sharing until the end.
 
Please read this incredible story, share it and talk about it:


Martha Keochareon

As Nurse Lay Dying, Offering Herself as Instruction in Caring

SOUTH HADLEY, Mass. — It was early November when Martha Keochareon called the nursing school at Holyoke Community College, her alma mater. She had a proposal, which she laid out in a voice mail message.
      
“I have cancer,” she said after introducing herself, “and I’m wondering if you’ll need somebody to do a case study on, a hospice patient.”
      
Perhaps some nursing students “just want to feel what a tumor feels like,” she went on. Or they could learn something about hospice care, which aims to help terminally ill people die comfortably at home.
      
“Maybe you’ll have some ambitious student that wants to do a project,” Ms. Keochareon (pronounced CATCH-uron) said after leaving her phone number. “Thank you. Bye.”
 
Please click on this link for the whole story:
 


Monday, December 3, 2012

Widows Fighting For Their Homes


Protect Your Property
 
Every woman needs to read this New York Times story (see link below).
 
Whether you are 18 or 81-years-old, single, married or widowed, every woman needs to know the financial facts about owning her own home.  Don't think that someone is going to go out of their way to explain it to you.  Find out about home ownership for yourself in order to protect yourself and the biggest investment of your life -- your home.
 
When my husband died, both of our names were on the mortgage.  I was lucky but I could easily have been one of these women in the New York Times story.  My husband had been ill and in and out of hospitals for about two and a half years before he died.  I remember a particularly poignant memory when my husband ended up in the emergency room and the doctors thought he was going to die that day.  One of the doctors asked me in a tone I will never forget if I had power of attorney.  I didn't.  I had never thought about it.
 
Really.

But I quickly got a lawyer to give it to me.
 
It was from that day forward that I saw I needed to be proactive about our property and finances.  I was working full-time and made sure from that time forward that I could pay the mortgage.  I felt very alone in that time and particularly vulnerable because I felt the financial weight as well as the responsibility for my husband and young son.

I knew I could pay the mortgage but that also was a lot of stress to handle.  Sadly, I know a few women who had to sell their houses after their husbands' deaths and it is not a pretty process.
 
It's already hard enough when you have to deal with the emotional minefield of grieving but to then find yourself in the throes of fighting to keep a roof over your head is just incomprehensible.  I remember the surreal and out-of-body feeling of planning my husband's funeral, trying to take care of our child and having no enthusiasm or energy to do any of it.  I can't imagine to then be expected to put all that turmoil aside and then focus on proving that the house I have been living in is legally mine.
 
I'm not sure why two people would buy a house and list only one person's name on the morgage but apparently this happens all the time and now we are finding out that the so-called gap in paperwork is creating a crisis for widowed women who are in their fifties and older.
 
If you have a mortgage, please make sure you are listed on it with your husband or partner.  Unfortunately, mortgage companies take a "business is business" attitude and don't let feelings of compassion or sympathy enter into their decisions about home foreclosures.
 
Here is the compelling New York Times story:
 

Tuesday, October 30, 2012

Home Sweet Home


 
 
Yesterday was a well needed luxury: a whole day spent at home.
 
I have not had one of those days for months and I really needed it.  A day to catch my breath and try to put things back in place.  A day with no schedule.  A day of waiting for Hurricane Sandy to slam into the East Coast so I didn't feel bad about staying inside and tending to my nest. 
 
Recently, there has been so many medical developments going on in my family that my time has been spent on more important things.  As a result, the house is definitely what you might politely call disheveled.  I am not complaining; just explaining that I am one of those people who believe that house chores will always be there, but the people that you care about will not.
 
So while the wind and rain swirled around my neighborhood, I found it was the perfect time to go through the many mini piles of papers that have been sitting on the dining room table.

In the middle of one pile of magazines and opened mail I had yet to file, I came across an old Parade magazine I had saved because it had an excerpt from a new book written by Anna Quindlen.  Quindlen is a best selling author and won a Pulitzer Prize in 1992 for her New York Times column, Public and Private.  Quindlen's new book is titled, Lots of Candles, Plenty of Cake.  I love Anna Quindlen because she is a beautiful and insightful writer and is always able to wisely put her finger on the core meaning of many of life's common yet bewildering situations.
 
In this case, Quindlen addresses stuff.  You know, the common stuff that surrounds us; the stuff that keeps piling up.  As in Americans' need for stuff and how material goods innocently creep into your house and then one day you discover you are buried under an emormous amount of things you really no longer want.
 
How timely that I should find this story as I am trying to get rid of stuff in my own house!!  There's a message here for me and as the holidays approach, I know I've got to get rid of things that I don't use.  If you aren't familiar with Quindlen's work, please allow me to share some of her sage advice from Lots of Candles, Plenty of Cake:
 
--"At some point desire and need became untethered in our lives, and shopping became a competitive sport.  It was generally agreed in our family that my grandmother Quindlen was a world-class shopper, but for her, there was always an object to the hunt: a Hitchcock chair, a pair of Naturalizer pumps.  Sometimes I feel as though credit cards have helped us concentrate on quantity, not quality.  Plastic is magical, as though the bill will never come due."
 
--Statisticians say our houses are almost twice as large, on average, as they were 40 years ago, but we all understand that that doesn't mean the people inside are any more content.  Now that I'm nearing 60, I understand the truth about possessions, that they mean or prove or solve nothing. Stuff is not salvation."

--"There was a period when I believed stuff meant something. I thought that if you had matching side chairs and a sofa that harmonized and some beautiful lamps to light them, you would have a home, that elegance signaled happiness.  I fooled myself into thinking House Beautiful should be subtitled Life Wonderful.

Amen, Anna!


Thursday, February 23, 2012

Author Jeffrey Zaslow

Please read this story about author Jeffrey Zaslow that recently ran in the New York Times.  What an interesting and inspiring man!  He sounds like he had an incredible gift for living in the moment.

Well - Tara Parker-Pope on Health

February 13, 2012, 5:37 pm

Life’s Frailty, and the Gestures That Go a Long Way


Jeffrey Zaslow by Eden Zaslow

Several years ago, my friend Jeffrey Zaslow sent me a chapter from a book he was writing about lifelong friendships among a group of women from Ames, Iowa. It was a powerful story about love and loss that moved me to tears.

With the draft pages still in my hands, I sat down with my daughter, a second-grader at the time, to talk about the importance of friendship. We talked about her girlfriends, why occasional fights didn’t matter and why she should always treasure her friends. It was a sweet moment, and I was grateful to Jeff for inspiring the conversation through his writing.

Later, I called him to tell him how much that single chapter had meant to my daughter and me. How, I asked him, had he managed to inject himself into this circle of women he had only recently met and so accurately depict the power of female friendship?

“I have a wife and three daughters,” he said, laughing, without missing a beat. “I’m quite comfortable being outnumbered by women.”

I thought about our conversation this weekend when I learned the terrible news that Jeff had died in a car accident on snowy roads on his way to his Detroit-area home, returning from a book-signing event in northern Michigan. “The Girls From Ames” became a best seller, and remains my favorite among the books he wrote. But many people know Jeff as co-author of “The Last Lecture,” with the Carnegie Mellon professor Randy Pausch, who delivered that now famous lecture after learning he had pancreatic cancer.

Mr. Zaslow was also co-author of memoirs with Gabrielle Giffords, the congresswoman from Arizona who was recovering from a gunshot wound to the head, and Chesley B. Sullenberger III, the pilot who safely ditched a damaged airliner on the Hudson River in 2009. Despite the disparate subject matter, Mr. Zaslow noted that much of his writing centered on the theme of love, commitment and living in the moment.

“We don’t know what moment in our lives we’re going to be judged on; that’s true for all of us,” he said at a TED talk last year, explaining what he had learned from Captain Sullenberger. “We’ve got to be honorable, be moral; we’ve got to work our hardest.”

Despite his success as a memoir co-author, Jeff’s true labor of love was his latest book, “The Magic Room: A Story About the Love We Wish for Our Daughters.” Dedicated to his daughters, the book focused on a bridal shop in Fowler, Mich., as a way to tell a story of parents’ hopes and dreams.

Mr. Zaslow’s role as a father was a common theme in his work, one he loved to talk about. Once when a boy canceled plans to take his daughter to a homecoming dance, Mr. Zaslow said he thought to himself, “What can I do for my sad daughter?” He decided to embarrass the boy in front of millions by writing a Wall Street Journal column about the lessons parents should be teaching their sons.

“The lesson of the story — and of that night — is to teach your sons to be chivalrous, and your daughters not to take it,” he said in a 2009 interview. “My daughter was not thrilled. And the boy was not thrilled. But you know what? The next time you want to take my daughter to the dance, follow through.”

Jeff often said he honed his skills for listening and offering advice during a stint as an advice columnist, a role he won in a contest to replace Ann Landers. During his many public talks, Jeff told the story of a favorite letter from a man who wanted his girlfriend, Julie, to undergo breast augmentation.

“Julie deserves someone who loves her for who she is, not how she looks in a sweater,” Jeff wrote in his reply. “If you can’t do that for her, she won’t need implants anyway because she will already have a big boob in her life. You.”

In every conversation I had with Jeff and in much of his writing, he talked about how much he had learned about the frailty of life and the importance of never leaving important words unsaid.

At his TED talk last November, Jeff told the audience about a column of his that focused on the words “I love you.” It appeared two days before Valentine’s Day in 2004, and led with the story of a judge in Maywood, Ill., who often told his children that he loved them. One day in 1995, as his 18-year-old daughter was leaving the house, the judge called out to his daughter. “Kristin, remember I love you,” he said.

“I love you too, Dad,” the girl replied. That day, Kristin was killed in a car accident. It was a story that resonated with Jeff, and one he took to heart, always saying “I love you” to his wife and daughters before saying goodbye or hanging up the phone.

“All of us should say ‘I love you’ to the people we care about,” Jeff said. “We should do it because you never know. I got about 1,000 e-mails from readers saying they were going to tell their children they loved them.

“What I like about my job is sometimes I’m just writing about the obvious. By doing that, you can touch a lot of people and tell them things that will change their lives, even if it’s something simple.”